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Join Our Study

The MECP2 Duplication Foundation is sponsoring an IRB approved patient database in partnership with a research team led by Dr. Huda Zoghbi and the Baylor College of Medicine. We are looking forward to helping create a complete picture of the syndrome, its symptoms, and the individuals it affects. This database will help provide a foundation for any future treatment by describing a baseline for the complications affecting MECP2 duplication patients. The data that it will be available to house will range from modules covering basic demographics to ones containing medical artifacts. Our intention is for the MECP2 duplication database to be available to IRB approved research studies with the intention of furthering the knowledge and research related to MECP2 duplication syndrome.

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If you'd like to be keep up-to-date on our progress and receive a notification when we're ready to accept participants, please fill out the form below.