Resources for Families
The MECP2 Duplication Foundation was founded and is operated by parents of children diagnosed with the syndrome. We understand your journey and are working alongside other diagnosed families, researchers, and medical professionals within the field to provide resources to families.
Join the MDS Community Mailing List
By signing up for the MECP2 Duplication Foundation email list, you will receive updates on research, the newest family support guides & webinars, and opportunities to connect with families.
The Guide for New Parents
We created this guide to give new parents the information we wish we had received when our children were first diagnosed...
Medical Advocacy Guide
We created this guide to help you partner with your medical team as your child’s best advocate. The information provided here was...
The Clinical Guide
We created this guide for parents to give to their local medical providers. MECP2 Duplication...