Resources for Families

We're here for you.

Resources for Families

The MECP2 Duplication Foundation was founded and is operated by parents of children diagnosed with the syndrome. We understand your journey and are working alongside other diagnosed families, researchers, and medical professionals within the field to provide resources to families.

The Guide for New Parents

We created this guide to give new parents the information we wish we had received when our children were first diagnosed...

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Medical Advocacy Guide

We created this guide to help you partner with your medical team as your child’s best advocate. The information provided here was...

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The Clinical Guide

We created this guide for parents to give to their local medical providers. MECP2 Duplication...

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