The MECP2 Duplication Foundation was founded and operated by parents of affected children. Our hope is to provide every newly diagnosed family with emotional support, information, and a community. We are here to support you as we share our stories, help you plan your next steps, and offer ideas for finding appropriate care for your child.
Receiving a MECP2 Duplication Syndrome diagnosis is overwhelming, and you may not know where to begin. The MECP2 Duplication Foundation wants to provide you with the tools to cope with this diagnosis.