We're here for you.
Ways You Can Help
Recent research shows there is hope for a treatment for MECP2 Duplication Syndrome. With your support, we can work together and make the dream of a treatment a reality. With many ways to be involved and make an impact, everyone can support the effort to cure MECP2 Duplication Syndrome.
Families and supporters can donate directly or create a campaign of their own using our fundraising platform. Donations will provide funding for cutting-edge research and build support for affected families.
The MECP2 duplication foundation is a 501(c)(3) eligible charity foundation. Thanks to an all volunteer staff, low overhead costs, and contributions by the foundation board, 100% of all donations go towards MECP2 duplication research. Every dollar raised is a dollar working for a cure.
Join the community of families and supporters who are actively raising awareness of MECP2 duplication syndrome. By sharing information on social media, hosting events, and telling your story, you can make a difference for those affected by MECP2 Duplication Syndrome.
Patient Registry Study
Provide support with your participation in the international MECP2 Duplication Syndrome patient registry. In collaboration with Dr. Huda Zoghbi and the Baylor University, the patient registry will provide support for all future clinical trials, increase knowledge of the disease, and provide the necessary information for future research.
If you'd like to be keep up-to-date on our progress and receive a notification when we're ready to accept participants, please use the link below to sign up.
Attend an Event
Learn more about MECP2 Duplication Syndrome fundraising and awareness events. Support an existing event or add information about your own.
Hosting an event and need support? Contact us, and we can help provide a platform, non-profit number, blueprint for an event, and more.
Families helping families. Provide support by telling your child’s MECP2 Duplication Syndrome story, making yourself available for other families questions, or applying to be a Family Support Representative.
Contact us for more information.