We're here for you.
MDS Email List
Receiving and living with a MECP2 Duplication Syndrome diagnosis can be overwhelming. From initial diagnosis to therapies, you may not know where to begin. At the MECP2 Duplication Foundation, we want to provide you with tools and ongoing support for your affected loved one. We are here to connect you with resources and families that will help you on this journey.
By signing up for the MECP2 Duplication Foundation email list, you will receive updates on research, the newest family support guides & webinars, and opportunities to connect with families.
While supplies last, all North American registrants will be mailed a free care pack including shirts, stickers, and information.
All families will receive two shirts as part of the care package thanks to a donation made by a private individual. No family-raised fund will be used for this purpose.